Guide to Giving
MEDIA, JOBS & RESOURCES FOR THE COMMON GOOD

DEBRA Australia

Contact

Name: Sue McKenna

Position: Administrator

Email: admin@debra.org.au

Address

PO Box 226

Pittsworth

Queensland Region 4356

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Our Mission / Objective

Vision:

A world free from the painful genetic skin condition, Epidermolysis Bullosa (EB).

Mission: 

  • To ensure continued access to specialised EB care across Australia
  • To support EB families in improving their quality of life
  • To encourage research which develops innovative treatments towards a final cure for EB; and
  • To promote public awareness and understanding of EB

Objectives:

  • Educate and support families living with Epidermolysis Bullosa (EB)
  • Investigate and implement programs to help EB sufferers to improve their care and quality of life
  • Offer financial and emotional support and also networking opportunities to families
  • Educate health professionals and the general public about EB
  • Raises awareness of this orphan disease
  • Raise vital money for Research to one day find a cure
  • Maintain DEBRA International membership to combine resources and networking opportunites

Projects in Progress

Our People

Registration Information

ABN

72 704 515 571

Tax Deductible

Yes

How to help us

Wills and Bequests

By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia. For more information contact admin@debra.org.au

Other support

WHAT CAN YOU DO?

SHARE

  • Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.

DO

  • Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.

DONATE

  • DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.

Work with us

Volunteer with us

Our Mission / Objective

Vision:

A world free from the painful genetic skin condition, Epidermolysis Bullosa (EB).

Mission: 

  • To ensure continued access to specialised EB care across Australia
  • To support EB families in improving their quality of life
  • To encourage research which develops innovative treatments towards a final cure for EB; and
  • To promote public awareness and understanding of EB

Objectives:

  • Educate and support families living with Epidermolysis Bullosa (EB)
  • Investigate and implement programs to help EB sufferers to improve their care and quality of life
  • Offer financial and emotional support and also networking opportunities to families
  • Educate health professionals and the general public about EB
  • Raises awareness of this orphan disease
  • Raise vital money for Research to one day find a cure
  • Maintain DEBRA International membership to combine resources and networking opportunites

Projects in Progress

Our People

Registration Information

ABN

72 704 515 571

Tax Deductible

Yes

How to Help us

Wills and Bequests

By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia. For more information contact admin@debra.org.au

Other support

WHAT CAN YOU DO?

SHARE

  • Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.

DO

  • Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.

DONATE

  • DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.

Work with us

Volunteer with us

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