Name: Sue McKenna
Position: Administrator
Email: admin@debra.org.au
Website: www.debra.org.au
PO Box 226
Pittsworth QLD 4356
Our Mission / Objective
Vision:
A world free from the painful genetic skin condition, Epidermolysis Bullosa (EB).
Mission:
- To ensure continued access to specialised EB care across Australia
- To support EB families in improving their quality of life
- To encourage research which develops innovative treatments towards a final cure for EB; and
- To promote public awareness and understanding of EB
Objectives:
- Educate and support families living with Epidermolysis Bullosa (EB)
- Investigate and implement programs to help EB sufferers to improve their care and quality of life
- Offer financial and emotional support and also networking opportunities to families
- Educate health professionals and the general public about EB
- Raises awareness of this orphan disease
- Raise vital money for Research to one day find a cure
- Maintain DEBRA International membership to combine resources and networking opportunites
Projects in Progress
Our People
Registration Information
ABN
Tax Deductible
How to help us
Wills and Bequests
By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia. For more information contact admin@debra.org.au
Other support
WHAT CAN YOU DO?
SHARE
- Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.
DO
- Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.
DONATE
- DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.
Work with us
Volunteer with us
Our Annual Reports
Our Mission / Objective
Vision:
A world free from the painful genetic skin condition, Epidermolysis Bullosa (EB).
Mission:
- To ensure continued access to specialised EB care across Australia
- To support EB families in improving their quality of life
- To encourage research which develops innovative treatments towards a final cure for EB; and
- To promote public awareness and understanding of EB
Objectives:
- Educate and support families living with Epidermolysis Bullosa (EB)
- Investigate and implement programs to help EB sufferers to improve their care and quality of life
- Offer financial and emotional support and also networking opportunities to families
- Educate health professionals and the general public about EB
- Raises awareness of this orphan disease
- Raise vital money for Research to one day find a cure
- Maintain DEBRA International membership to combine resources and networking opportunites
Projects in Progress
Our People
Registration Information
ABN
Tax Deductible
How to Help us
Wills and Bequests
By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia. For more information contact admin@debra.org.au
Other support
WHAT CAN YOU DO?
SHARE
- Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.
DO
- Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.
DONATE
- DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.
