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MEDIA, JOBS & RESOURCES for the COMMON GOOD

Haemochromatosis Australia

Contact

Name: Tony Moorhead

Position: Secretary

Email: admin@ha.org.au

Website: http://www.haemochromatosis.org.au/

Address

PO Box 6185

Meridian Plains Queensland 4551

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Our Mission / Objective

Hereditary haemochromatosis (inherited iron overload disorder)  is the most common genetic disorder in Australia. It affects 1 in 200 Australians.

Haemochromatosis Australia is a non-profit registered charity run entirely by volunteers. We are the support and advocacy group for people affected by haemochromatosis, their families and loved ones.

We provide support for people with the disorder and work to increase awareness of haemochromatosis in the community and the medical and health professions. We have been operating for over 30 years and continue to grow and expand our activities.

Our Vision: No Australian will suffer harm from haemochromatosis.

Our Mission: As the primary advocacy group for Australians affected by haemochromatosis we provide support and promote awareness, early diagnosis and research.

We are an all volunteer group. Our funding is primarily member subscriptions and donations and public donations. We receive no government support for operational expenses.

Our Values: We believe that people with haemochromatosis are entitled to:

  • The same quality of life and life expectancy as other Australians
  • Diagnosis before symptoms occur
  • Well informed health and medical services
  • Easy access to the knowledge, support and services they need.

Our Objectives

1. Support people with haemochromatosis: We provide support and up to date information to people with haemochromatosis and their families to assist them to manage their condition. We provide opportunities to meet other individuals and families experiencing haemochromatosis.

2. Community Awareness: We promote awareness in the community about haemochromatosis.

3. Professional awareness: We raise awareness in medical and health professionals in order to improve the rate of early diagnosis and treatment.

4. Health Policy Improvement: We influence and advocate appropriate health policy relating to haemochromatosis.

5. Research: We support, encourage and maintain a high interest in research that will contribute towards our vision.

6. Administration and governance: We operate efficiently and with high ethical standards while growing our membership and influence.

Our Services

Haemochromatosis InfoLine 1300 019 028. Call with questions or concerns about haemochromatosis. Open during normal business hours.

Website: Provides helpful information about haemochromatosis plus useful resources including videos, booklet and brochures, information sheets and more.

Print Information: We provide a variety of free information resources including our Haemochromatosis Your Questions Answered booklet.

Our Beneficiaries

People affected by haemochromatosis – people with the condition, their families and friends.

Projects in Progress

Provide CPD accredited education resources for GPs

Information stands at medical conferences

Iron Matters podcasts – by medical professionals for health professionals

Patient and expert videos

Annual awareness campaign World Haemochromatosis Week

My Iron Manager smartphone app

Social media campaigns to raise awareness and sharing patient stories

Our People

CEO

Brook Roberts : brook.roberts@ha.org.au, President

Leadership Team

Secretary – Tony Moorhead : tony.moorhead@ha.org.au

Names of Board Members

See our website www.haemochromatosis.org.au/about-us

Number of Volunteers

30

Registration Information

ABN

79 827 140 617

Tax Deductible

Yes

How to help us

Wills and Bequests

Most people would like to leave the world a little better off, knowing they have made a difference to a cause they really care about.

By leaving a gift to Haemochromatosis Australia in your Will you can help to change and save lives well into the future. Your legacy will help provide support and promote awareness, early diagnosis and research into haemochromatosis. Help create a better future for people living with this genetic condition.

If you would like more information, visit our website www.haemochromatosis.org.au or contact our Secretary

The Secretary
Haemochromatosis Australia
PO Box 6185
Meridan Plains QLD 4551

General Donations

Make a tax-deductible donation to Haemochromatosis Australia.

Together we can ensure no-one suffers harm from haemochromatosis.

Haemochromatosis can be relentless and life-threatening, but it doesn’t have to be.

With over 30 years of experience, Haemochromatosis Australia provides advocacy and support for people living with haemochromatosis, as well as working with medical practitioners to increase early diagnosis and treatment.

Other support

Become a member: Join Haemochromatosis Australia. Together we are stronger. https://haemochromatosis.org.au/join_new2020/ 

Fundraise for us: No-one should suffer harm from haemochromatosis. By raising funds for Haemochromatosis Australia, you will be helping us increase awareness for early diagnosis and treatment.

There are many ways you can do this including: 

See our website www.haemochromatosis.org.au for more information

Work with us

We are an all volunteer organisation with no paid employees.

If you would like to volunteer with us, contact admin@ha.org.au

Volunteer with us

Community and Awareness

There are many ways our Volunteers can make a difference. We welcome you to take part in:

  • Working with us to raise awareness
  • Representing haemochromatosis in your community
  • Helping out at meetings and events
  • Responding to enquiries on our InfoLine 
  • Or simply just provide feedback

It is up to you how much you want to get involved.

Operations and marketing

We also need help from people with special skills such as

  • Marketing
  • Social media
  • Graphic design
  • Newsletter editing
  • Event management
  • Grant writing
  • Clerical and administrative work
  • Bookkeeping
  • Information technology and system administration

If you are interested in volunteering with us, please email admin@ha.org.au 

Our Annual Reports

Our Mission / Objective

Hereditary haemochromatosis (inherited iron overload disorder)  is the most common genetic disorder in Australia. It affects 1 in 200 Australians.

Haemochromatosis Australia is a non-profit registered charity run entirely by volunteers. We are the support and advocacy group for people affected by haemochromatosis, their families and loved ones.

We provide support for people with the disorder and work to increase awareness of haemochromatosis in the community and the medical and health professions. We have been operating for over 30 years and continue to grow and expand our activities.

Our Vision: No Australian will suffer harm from haemochromatosis.

Our Mission: As the primary advocacy group for Australians affected by haemochromatosis we provide support and promote awareness, early diagnosis and research.

We are an all volunteer group. Our funding is primarily member subscriptions and donations and public donations. We receive no government support for operational expenses.

Our Values: We believe that people with haemochromatosis are entitled to:

  • The same quality of life and life expectancy as other Australians
  • Diagnosis before symptoms occur
  • Well informed health and medical services
  • Easy access to the knowledge, support and services they need.

Our Objectives

1. Support people with haemochromatosis: We provide support and up to date information to people with haemochromatosis and their families to assist them to manage their condition. We provide opportunities to meet other individuals and families experiencing haemochromatosis.

2. Community Awareness: We promote awareness in the community about haemochromatosis.

3. Professional awareness: We raise awareness in medical and health professionals in order to improve the rate of early diagnosis and treatment.

4. Health Policy Improvement: We influence and advocate appropriate health policy relating to haemochromatosis.

5. Research: We support, encourage and maintain a high interest in research that will contribute towards our vision.

6. Administration and governance: We operate efficiently and with high ethical standards while growing our membership and influence.

Our Services

Haemochromatosis InfoLine 1300 019 028. Call with questions or concerns about haemochromatosis. Open during normal business hours.

Website: Provides helpful information about haemochromatosis plus useful resources including videos, booklet and brochures, information sheets and more.

Print Information: We provide a variety of free information resources including our Haemochromatosis Your Questions Answered booklet.

Our Beneficiaries

People affected by haemochromatosis – people with the condition, their families and friends.

Projects in Progress

Provide CPD accredited education resources for GPs

Information stands at medical conferences

Iron Matters podcasts – by medical professionals for health professionals

Patient and expert videos

Annual awareness campaign World Haemochromatosis Week

My Iron Manager smartphone app

Social media campaigns to raise awareness and sharing patient stories

Our People

CEO

Brook Roberts : brook.roberts@ha.org.au, President

Leadership Team

Secretary – Tony Moorhead : tony.moorhead@ha.org.au

Names of Board Members

See our website www.haemochromatosis.org.au/about-us

Number of Volunteers

30

Registration Information

ABN

79 827 140 617

Tax Deductible

Yes

How to Help us

Wills and Bequests

Most people would like to leave the world a little better off, knowing they have made a difference to a cause they really care about.

By leaving a gift to Haemochromatosis Australia in your Will you can help to change and save lives well into the future. Your legacy will help provide support and promote awareness, early diagnosis and research into haemochromatosis. Help create a better future for people living with this genetic condition.

If you would like more information, visit our website www.haemochromatosis.org.au or contact our Secretary

The Secretary
Haemochromatosis Australia
PO Box 6185
Meridan Plains QLD 4551

General Donations

Make a tax-deductible donation to Haemochromatosis Australia.

Together we can ensure no-one suffers harm from haemochromatosis.

Haemochromatosis can be relentless and life-threatening, but it doesn’t have to be.

With over 30 years of experience, Haemochromatosis Australia provides advocacy and support for people living with haemochromatosis, as well as working with medical practitioners to increase early diagnosis and treatment.

Other support

Become a member: Join Haemochromatosis Australia. Together we are stronger. https://haemochromatosis.org.au/join_new2020/ 

Fundraise for us: No-one should suffer harm from haemochromatosis. By raising funds for Haemochromatosis Australia, you will be helping us increase awareness for early diagnosis and treatment.

There are many ways you can do this including: 

See our website www.haemochromatosis.org.au for more information

Work with us

We are an all volunteer organisation with no paid employees.

If you would like to volunteer with us, contact admin@ha.org.au

Volunteer with us

Community and Awareness

There are many ways our Volunteers can make a difference. We welcome you to take part in:

  • Working with us to raise awareness
  • Representing haemochromatosis in your community
  • Helping out at meetings and events
  • Responding to enquiries on our InfoLine 
  • Or simply just provide feedback

It is up to you how much you want to get involved.

Operations and marketing

We also need help from people with special skills such as

  • Marketing
  • Social media
  • Graphic design
  • Newsletter editing
  • Event management
  • Grant writing
  • Clerical and administrative work
  • Bookkeeping
  • Information technology and system administration

If you are interested in volunteering with us, please email admin@ha.org.au 

Our Annual Reports

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