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Organisation : CHARGE Syndrome Association of Australasia Ltd

Location : Australia (ANY)

Time required : Start date: September 2019

Duration of project : Minimum 12 months

Sector : Disabilities

About the role

CHARGE Syndrome Association of Australasia is the only volunteer not-for-profit support group dedicated to improving the lives of individuals with CHARGE syndrome, in Australasia.

CHARGE syndrome is a complex syndrome of multi sensory impairments. Individuals have impaired hearing, vision, smell, taste, touch, proprioception and inner ear balance. Multiple disciplines are involved long term in the lives of these individuals; from medical intervention to communication strategies, sensory integration, behaviour management, therapy and education support. Unfortunately for families, many of our health and educational professionals do not fully understand CHARGE syndrome and the complexities of multi sensory impairment.

Our vision is for a world where people with CHARGE syndrome reach their potential and thrive in inclusive and supportive communities. We help connect our community so that we inspire and learn from each other, provide a gateway to information and resources, and grow a network of local expertise. Our activities include biennial conferences, local networks and events (CHARGE Champions), outreach services to families and professionals (CHARGE Assist) and seeking opportunities to contribute to policy change and research.

We are seeking a person to join our board as Treasurer:

  • attendance at a one hour monthly board meetings (via telephone)
  • reconciliating bank statements and online payments
  • managing quarterly BAS
  • preparing an annual budget,
  • preparing reporting for audits
  • lodging returns with Australian Securities and Investments Commission (ASIC)
  • knowledge of NZ sector would be benefitial but not essential

About the organisation

Organisation name : CHARGE Syndrome Association of Australasia Ltd
Not for Profit : Yes

How to apply

Applications not allowed for this volunteering opportunity.

Please quote in application: Treasurer via Pro Bono Australia.


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