Executive Office Manager & Operations

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Location : Sydney (Sydney CBD)

Organisation : FSHD Global Research Foundation

Work Type : Full-time

Salary Type : Annual Package

Application Closing Date : 18-09-2017

About the Role

Why you’ll love to work here

This multi award winning charity is looking for a superstar Office Manager with executive skills to manage the FSHD Global Research Foundation’s internal and external operations. If you are looking for a company that motivates you on a daily basis, have a passion for people, are a smooth operator, have an interest in medical research, and wish to network and liaise with stakeholders from around the world, then this is the perfect opportunity for you! With an inspiring and creative Chairman and Board of Directors, you will learn from the very best. If you are interested in philanthropy, thrive on going the extra mile, and are willing to learn about one of the most common forms of muscular dystrophy affecting adults and children, then this is the dream job for you!


Your Role

This is an Executive Office Manager and Operations position that requires experience working in small organisations, meaning you will be articulate, highly organised with impeccable attention to detail and ability to judge multiple projects simultaneously. This is a diverse role consisting of liaison with internal management and external stakeholders, sponsors, donors and members of the FSHD community. Together with traditional office management and administrative duties, the role will include preparation of board reports, science reports, and sponsorship proposals. You will liaise with scientists from around the world, and be fundamental to the day to day running of the Foundation. In addition the varied role requires an understanding of media, marketing, fundraising, events and someone who is interested to learn about the disease which the Foundation champions – Facioscapulohumeral muscular dystrophy. Your previous experience in a similar role means you can hit the ground running. If you have an exceptional work ethic and are a dedicated administration professional, we want to hear from you! This is a newly created position which gives you the opportunity to make the role your own.


Culture & benefits

Recently awarded The Australian Charity of the Year, the FSHD Global Research Foundation is a small organisation achieving incredible milestones in its quest to find treatments and an ultimate cure for the debilitating muscle wasting disease, FSHD. The culture of this fast paced organisation is one of passion, drive and purpose. Founded and Chaired by iconic businessman and philanthropist Bill Moss AO, this pocket rocket organisation prides itself on its transparency, accountability and pure donation model. As the largest global funder of independent FSHD medical research, the personal development, satisfaction and creativity this Foundation offers is like no other.


Your skills & expertise

● Humanistic approach to managing the office and people
● Strong attention to detail
● Proactive, can-do attitude
● Incredibly efficient and highly organised
● Ability to remain calm under pressure
● Can demonstrate initiative
● Ability to build strong rapport and robust relationships with sponsors, donors and researchers
● Previous experience with board papers
● Advanced Microsoft Office and Powerpoint skills
● Ability to multitask and prioritise competing deadlines
● Forward thinking and adept at working in a fast paced environment
● Polished written and verbal communication
● Ability to navigate websites, mobile apps and manage IT security
● Manage Social Media and Communications
● Strong written skills for drafting sponsorship proposals and newsletters
● Strong Not for Profit acumen
● Willingness to learn about the disease and the medical aspect behind the cause ● Ability to network
● A healthy sense of humour

About the Organisation

Organisation Name : FSHD Global Research Foundation

The FSHD Global Research Foundation is a multi award winning Foundation that focuses on finding treatments and a cure for the debilitating disease Facioscapulohumeral Muscular Dystrophy (FSHD). In doing so, we fund world-class medical research, awareness and education. We are also committed to complete transparency and accountability in our operations.

The Foundation was established in 2007 by Bill Moss AO, a well-known Australian businessman and philanthropist who has FSHD. Since then, we have been addressing the chronic lack of medical funding and awareness of FSHD, both in Australia and globally. Over the past 9 years, the Foundation has committed $9 million to fund over 40 ongoing medical research grants in 9 countries; the USA, Canada, the Netherlands, Italy, France, Belgium, Spain New Zealand and Australia.

The FSHD Global Research Foundation does not operate like an average not for profit. We allocate 100% of the tax deductible donations we receive to current and future medical research grants. We are also transparent in doing so, offering all donors via the ‘FSHD – Find the Cure’ mobile app the opportunity to track exactly which research programs their money has been allocated and the latest milestones of those programs.

In its truest sense, the FSHD Global Research Foundation is a small organisation doing some very big things!

Apply for this Job

For details concerning this role, please contact

Natalie Moss

Phone : 0404869902

Email : natalie@fshdglobal.org

Applications not allowed for this job listing.

Please quote in application: Executive Office Manager & Operations via Pro Bono Australia.


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