The objective of the organisation is to help families find the services and support they need, when they have a child with a rare chromosome disorder or disease. By providing direct relief through support both online and in social settings where as individuals and families can feel accepted and supported.
There are so many things I (Pat Jonas) personally want to achieve with this site, not for my own gains but to know that our experience with Georgia can help someone else in their Journey. It is still astounding to me that there are so many families in Australia who have children with Rare Chromosome Disorders and who don’t know where to get help. We feel so lucky to have met the right people at the right time along our journey. We started with a wonderful physical therapist who worked hard with Georgia, then she pointed us in the direction of Developmental assessments.
I want to make sure that all these wonderful kids and families can get as much support from day one.
If you have ideas or know of any great therapists or doctors in your area then let us know. We can add them to our list so other families can get help too.
We are a wealth of knowledge and together we can help one another to take each step on this journey.
ARCAN is a registered Charity; as a Health promotion charity, ARCAN is endorsed as a Deductible Gift Recipient (DGR) from 19 Oct 2012. It is covered by Item 1 of the table in section 30-15 of the Income Tax Assessment Act 1997.
We hold an Authority to fundraise in NSW. Our Charitable Fundraising Number is CFN/22743
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