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Podcast: Who’s Missing Out on the NDIS?

19 July 2016 at 11:32 am
Ellie Cooper
Not all Australians with disability are set to benefit from the National Disability Insurance Scheme.

Ellie Cooper | 19 July 2016 at 11:32 am


Podcast: Who’s Missing Out on the NDIS?
19 July 2016 at 11:32 am

Not all Australians with disability are set to benefit from the National Disability Insurance Scheme. 

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On 1 July the nation-wide rollout of the National Disability Insurance Scheme began. By the time it’s fully implemented in 2019 it’s estimated 460,000 people with disability will receive a support package.

The $22-billion-per-year scheme, twice the size of the previous system, has been largely welcomed by the disability sector, promising more support for more people.

But not all Australians with disability will benefit – some will be eligible but won’t receive the support they are entitled to, while others simply aren’t covered despite having “significant and ongoing support needs”.

In the second episode of a three-part series, Not for Podcast investigates Who’s Missing Out on the NDIS?  

Featured in this episode:

  • Professor Karen Fisher, from the Social Policy Research Centre at the University of New South Wales
  • Damian Griffis, CEO of First Peoples Disability Network.
  • Laura Collister, director of Mental Health Services, Research and Development at MI Fellowship
  • Sarah Saunders, chief advocate at National Seniors Australia
  • Patrick Walden, 27-year-old, full-time secondary teacher with cerebral palsy based on the Sunshine Coast
  • Maryanne Diamond, general manager of media, communications and engagement at the National Disability Insurance Agency.


Ellie Cooper  |  Journalist  |  @ProBonoNews

Ellie Cooper is a journalist covering the social sector.


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  • Kathryn Duncan says:

    Is it possible to get a transcript?

  • Brent says:

    I joined th ndis and have no idea what they are, how to access it. I found the centre link disability process demoralizing to prove you have a disability. They say they want you to have as they state a stable disabaty which I don’t have. It has taken ten months of hell to get label as actually having a disability. The whole system and people I listen to miss the big thing that people with disability need. That is Quatlity Of Life. That phrase needs to be state in every conversation that is held by NDIS or other providers. They are all about work or volunteering to receive disability survices, and don’t under stand the stress that that creates causing mental issue for us. I am so confused about the it all. Having two disabilities one learning and the other physical which makes it hard to find out just how to get quality of life here in Australia. To read that centerlink will give you an early assessment appoint and if you make it you are eligible to go to work. Most people with a disability given enough warning prepare themselves for that one day and the appointment well in advance, because that appointment is very important. I don’t do well in the mornings and when I changed my 8:30 am appointment and said I make afternoon appointments due to my mobility issues and medication I was talked down too. This is were ndis needs to step up and advocate for people like me. Its not that I don’t want to but with little sleep each night or none for days in a row mornings are hard. I barely make the disability level here at home, but spent more time in emergency rooms since returning home due to falls, which I can’t control or predict, power lose medication reaction and many other reasons which all stem from the management of my unstable disability. These people I meet to approve me as disabled sure seem to have one thing in mind to dis allow you Quality Of Life. Through this hole process I have learned that if your disability is not down in black and white expect the longest fight of your life with each person you talk to judging your ever step. If you can sit for more than ten minutes. Yes with the help of heavy medication which I have loaded up on to prepare for the interview. Should have just turned up in the ambulance which took me to emerg last week because I went to sit with my family for dinner, not knowing that I would end up falling backward onto the chair off it on to the floor bashing my head and hurting my lower back to the point the ambulance attendant commented on the muscle spaziums running from my right toes to my lower back. This is a normal day but my family deals with it. They watch me as much as possible but I still spend hours alone each day because I don’t know how to get the right help. I did ask when I joined the NDIS but was told because I don’t have yet a listed disability they couldn’t help me. Those are the cracks. Remember all I want is a little bit of quality of life. I do qualify now for with the lowest points on the system but still don’t have an understand what steps I have take or what lies ahead of me in this tangled web that has been created. Do I want to know I am not sure?


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